Thank you for visiting my page! This year, I am participating in the Michael J. Fox Foundation's (MJFF) Tour de Fox Cycling Series for Parkinson's Research. An estimated six million people worldwide are living with Parkinson’s disease (PD). There is no known cure. The MJFF is working to change this.
I was first diagnosed with Parkinson's in 2005. In 2014, I was accepted into the first phase of a clinical trial partially funded by MJFF that was being held to test the safety of an experimental gene therapy treatment designed to prolong and improve the effectiveness of Parkinson's medications. On June 19th, I became the 16th person in the world to undergo the treatment that consisted of a one-time infusion of a specific gene into my brain via an 8-hour brain surgery.
The results for myself and the other 19 patients who received this gene therapy treatment have been very positive -- in my case decreasing the amount and frequency of the medications I take to decrease my Parkinson's symptoms and slow the progression of the disease in me. The clinical trials for this therapy have now advanced to the stage of double blind studies needed to confirm its benefits before it is approved for the general Parkinson's population.
I feel blessed that I had the opportunity to participate in this trial and will be eternally grateful for the expert clinical team at UCSF and to the MJFF that has made this possible. I have learned firsthand the value of clinical research for this and other diseases and want to give back in a small way. I hope you will consider joining me in this.
Your gift will make a real difference: Tour de Fox Wine Country ride proceeds will go directly to The Michael J. Fox Foundation’s high-impact research programs.
Help me move a cure for Parkinson's disease forward by making a donation today.
Thank you for your support! - Edwin Ferran